Anne Fournier

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Projets de recherche récents

The Impact of an Innovative eHealth Transition Intervention on Self-Management Skills Among Young Adults with Congenital Heart Disease

2019/20-2020/21 • $521,220 • PI,CO
There have been major advances in the care of children born with heart defects ("congenital heart disease"- CHD) over the past 3 decades. Now over 90% of children with CHD reach adulthood. However, adolescent and young adult "survivors" are at risk of further heart problems. Unfortunately, most...

Participatory action research for the development of a tailored pediatric-adult transition program

2018/19-2020/21 • $230,354 • PI,CO
As adolescents with chronic health conditions enter adulthood, they need to be prepared to move from child-centered healthcare services to adult-focused healthcare services. A recent review of research about transition programs found that most of them focused on helping young people transfer to...

Complex genetics of hypertrophic cardiomyopathy: Towards an integration of polygenic risk in clinical care

2020/21 • $229,292 • PI,CO
Hypertrophic cardiomyopathy (HCM) is the leading cause of sudden death in young apparently healthy individuals. It is a genetic disease where complications can be prevented with early diagnosis. Genetic testing using a blood sample is now routinely done in family members to assess the risk of...

Predictors of Perceived Informational Support and Self-Efficacy in Patients at Increased Risk of Sudden Unexpected Cardiac Arrest and their Caregivers

2017/18 • $39,807 • PI,CO,Other
This research project is looking to conduct a national survey of patients, family members and caregivers of those with an inherited heart rhythm disorder, unexplained cardiac arrest or sudden unexpected death. This project is building off a previous project, which looked at the needs and support...

Mise en place d'un programme de transition entre les soins en cardiologie pédiatrique de Ste-Justine vers la cardiologie adulte à l'Institut de Cardiologie de Montréal. : le rôle du patient-ressource

2016/17 • $15,000 • PI,CO,Other
Un grand nombre d'enfants qui decedaient apres leur naissance en raison de pathologies complexes, en particulier de malformations cardiaques congenitales, peuvent survivre aujourd'hui jusqu'a l'age adulte et aspirer a une vie normale. Toutefois, souvent, ils subissent dans leur parcours de soin...

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