Beyond tokenism: A mixed methods study on the tools of engagement for sustainable patient-provider partnerships using participatory approaches

Renseignements sur le financement
Canadian Institutes of Health Research
  • Type de subvention: Stratégie de la recherche axée sur le patient (SRAP) – Recherche axée sur le patient : Subventions de collaboration
  • Année: 2017/18
  • Financement total: $30,000
Mots clés
Chercheur(e) principal(e)
Collaborateur(s)
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Aucune organisation partenaire n’a été touvée.

Sommaire du projet

Despite widespread recognition that the experiential knowledge of patients and communities is an invaluable complement to the scientific knowledge of providers, there is a limited number of successful examples patient-provider partnerships. In most cases, patient engagement is short term, remains superficial, and does not have the power to impact services as consequence of institutional stigma. The main goal of this project is to implement and evaluate patient-oriented research (iPOR) to foster actual engagement of persons living with mental illness, members of their entourage (family/intimate others) and providers. As such, this project aims to: 1) co-create action-initiatives with stakeholders of front-line services that integrates their experiential knowledge in the provision and organization of services; 2) empower persons living with mental illness, members of their entourage, providers and administrators to realize these initiatives in practice; and 3) integrate patient-oriented research results directly into the transformation of mental health services. In parallel, this project will evaluate the process and outcomes of using an iPOR toolkit to implement the values of recovery and of the primacy of the person by empowering local stakeholders to transform services to meet their concerns. The impact of this project will be a toolkit that can be used to engage, empower and integrate the experiential knowledge of local stakeholders in the design of mental health services.

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