Nathalie Major

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Recent Research Projects

CHILD-BRIGHT: Child Health Initiatives Limiting Disability- Brain Research Improving Growth and Health Trajectories

2015/16-2020/21 • $12,760,751 • PI,Other
The CHILD-BRIGHT network will achieve brighter futures for children with brain-based developmental disabilities (BDD) and their families by creating novel interventions to optimize development, promote healthy outcomes, and deliver responsive and supportive services across the life-course. Our...

Health Outcomes of Children with Medical Complexity and their Caregivers

2015/16-2020/21 • $896,859 • PI,Other
The issue: Medical, surgical and technological advances have improved survival for almost every life-threatening childhood condition, such as extreme prematurity, complex congenital anomalies, and congenital or acquired brain injury. These ‘children with medical complexity’ (hereafter CMC) are...

Designing a Responsive and Integrative Model of Respite Care for Families of Children with Complex Care Needs and Conditions (CCNC) through Patient-Oriented Research

2019/20-2020/21 • $275,962 • PI,CO
Children with complex care needs and conditions (CCNC) are those with chronic physical and developmental disabilities who require multiple services. Caring for children with CCNC is an immense undertaking for families that involves constantly coordinating multiple needs and services in a complex...

The Evaluation of the Connected Care Program for Children with Medical Complexity: A Prospective Cohort Study with Embedded Health Economic and Qualitative Analysis

2019/20-2020/21 • $210,103 • PI,CO,Other
In Canada, there are a growing number of children who are living longer than before due to new medical technologies that allow them to survive such as a feeding tube or a breathing machine. These new supports are used in the home setting, which allows these families to be at home with their...

Designing interventions to improve delivery of health care for children with inherited metabolic diseases: family and provider perspectives

2017/18-2019/20 • $738,224 • PI,CO
Children with rare inherited metabolic diseases (IMD) are among the small number of children who have disproportionately high needs for care, both in the hospital and in the community. This has important impacts on their families and on the health system. In a recent study, we interviewed...