Nathalie Major

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Recent Research Projects

CHILD-BRIGHT: Child Health Initiatives Limiting Disability- Brain Research Improving Growth and Health Trajectories

2015/16-2020/21 • $12,760,751 • PI,Other
The CHILD-BRIGHT network will achieve brighter futures for children with brain-based developmental disabilities (BDD) and their families by creating novel interventions to optimize development, promote healthy outcomes, and deliver responsive and supportive services across the life-course. Our...

Health Outcomes of Children with Medical Complexity and their Caregivers

2015/16-2020/21 • $896,859 • PI,Other
The issue: Medical, surgical and technological advances have improved survival for almost every life-threatening childhood condition, such as extreme prematurity, complex congenital anomalies, and congenital or acquired brain injury. These ‘children with medical complexity’ (hereafter CMC) are...

Designing interventions to improve delivery of health care for children with inherited metabolic diseases: family and provider perspectives

2017/18-2019/20 • $738,224 • PI,CO
Children with rare inherited metabolic diseases (IMD) are among the small number of children who have disproportionately high needs for care, both in the hospital and in the community. This has important impacts on their families and on the health system. In a recent study, we interviewed...