Interventions to Support Transitions in Care for Children and Families with Complex Health Care Needs in the Community

Canadian Institutes of Health Research

• Grant type: Operating Grant: Pan-Canadian SPOR Network in Primary & Integrated Health Care Innovations - Knowledge Synthesis Grants
• Year: 2018/19
• Total Funding: $25,000

• adolescent
• CARE COORDINATION
• CHILD
• COMPLEX NEEDS
• Family
• HEALTH CARE DELIVERY
• health research
• health services research
• intervention
• PEDIATRIC
• SCOPING REVIEW
• transition
• Youth

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• Azar, Rima
  Mount Allison University
• Chafe, Roger E
  Memorial University of Newfoundland
• Curran, Janet
  Dalhousie University
• Dionne, Emilie
  St. Mary's Hospital Center
• Doucet, Shelley A
  University of New Brunswick
• Montelpare, William J
  University of Prince Edward Island

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• Breneol, Sydney L
  Dalhousie University
• Burge, Frederick I
  Dalhousie University
• Burgess, Stacy A
  IWK Health Centre
• Charlton, Patricia C
  University of Prince Edward Island
• Gorter, Jan Willem
  McMaster University
• Horsman, Amanda R
  Université de Moncton
• Keeping-Burke, Lisa M
  University of New Brunswick
• Luke, Alison
  University of New Brunswick
• Lynk, Andrew D
  IWK Health Centre
• Martin-Misener, Ruth
  Dalhousie University
• McIsaac, Jessie-Lee D
  Mount Saint Vincent University
• McKibbon, Shelley
  Dalhousie University
• Nagel, Daniel (Dan) A
  University of New Brunswick
• Riveroll, Angela L
  University of Prince Edward Island
• Salijevic, Anja
  University of Prince Edward Island
• Thompson, Katherine J
  University of New Brunswick

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• Dalhousie University
  
• Eastern Health, Department of Research and Innovation
  
• IWK Health Centre
  
• New Brunswick Health Research Foundation
  
• University of Prince Edward Island
  

Children and youth with complex health care needs have a variety of conditions that range from less severe to life-threatening or life-limiting. For example, some children depend on medical devices and technologies whereas others require less intensive supports to live, work, and play in community settings. These children and youth experience many transitions, moving across stages of their conditions, from childhood to adulthood, between care settings, or from hospital to home/school or vice versa. Transitions are often challenging not only for children, but also for their families and care providers. In this one-year project, we will conduct a review of the literature to shed light on interventions that support transitions in care occurring from: 1) diagnosis to age 19 years; and 2) pediatric to adult care, for youth aged between 14 and 25 years of age. Findings from our project, which are in line with primary care priorities established by NB, NS, PEI, and NL, will lead to recommendations for policy and practice, and will inform future research to support transitions in care for children with complex health care needs and their families. At the heart of this proposal are patients who will have a meaningful role in the project's design and implementation. Other members of the research team include researchers, clinicians, librarians, policy makers, and community members across the Atlantic provinces and beyond.